Rapunzel syndrome is a rare condition that occurs when someone with TTM eats the hair they pull, leading to the formation of a hairball, known as a trichobezoar, in their stomach. This trichobezoar can extend into the intestines, creating a large mass that’s difficult for the body to digest or pass naturally.

Over time, these hairballs can grow in size and, without treatment, cause severe health complications.

The condition is called "Rapunzel syndrome" as a reference to the fairy tale character Rapunzel, who is known for her extraordinarily long hair. In the story, Rapunzel was locked in a tower and let down her long hair to allow her rescuer to climb up. Her hair became a symbol of beauty and endurance.

However, in the medical condition known as Rapunzel syndrome, long hair becomes a source of harm rather than help, as it collects in the stomach and forms a dangerous blockage.

The name captures the unusual and serious nature of the condition in a way that’s easy to remember.

Living with TTM can already feel isolating, and Rapunzel syndrome adds another layer of complexity. You might feel ashamed or worried about discussing these behaviors with others.

But remember, beautiful, you’re not alone, and there’s no shame in seeking help for something that impacts your well-being. Many people with TTM struggle with behaviors they don’t fully understand at first, and reaching out to talk about it is a brave and essential step.

Talking to a healthcare provider, therapist, or trusted loved one about hair ingestion is important because it opens the door to getting the help you deserve.

 You’re not weak or strange for experiencing this — instead, you’re human, and reaching out shows that you are taking care of your body and your medical condition.

If you or someone you know with TTM experiences urges to eat their pulled hair, we can’t emphasize enough how important it is to talk to someone. Reaching out for support can help prevent the much more dangerous complications of Rapunzel syndrome.

Healthcare professionals, especially those familiar with TTM, can guide you toward strategies to stop hair ingestion and manage TTM symptoms overall.

Support groups, therapy, and peer-led programs like those offered by HFHP are safe spaces to explore these behaviors without judgment.

We understand the unique challenges that women with TTM face, and we’re here to listen, support, and empower you on your journey to healing.

Rapunzel syndrome is a serious but preventable condition. If you or someone you know with TTM is eating pulled hair, please reach out immediately to your healthcare provider for support as this is a dangerous medical situation.